Electronic Resource

Embodied Narratives:Protecting Identity Interests through Ethical Governance of Bioinformation

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Increasing quantities of information about our health, bodies, and biological relationships are being generated by health technologies, research, and surveillance. This escalation presents challenges to us all when it comes to deciding how to manage this information and what should be disclosed to the very people it describes. This book establishes the ethical imperative to take seriously the potential impacts on our identities of encountering bioinformation about ourselves. Emily Postan argues that identity interests in accessing personal bioinformation are currently under-protected in law and often linked to problematic bio-essentialist assumptions. Drawing on a picture of identity constructed through embodied self-narratives, and examples of people's encounters with diverse kinds of information, Postan addresses these gaps. This book provides a robust account of the source, scope, and ethical significance of our identity-related interests in accessing – and not accessing – bioinformation about ourselves, and the need for disclosure practices to respond appropriately. This title is also available as Open Access on Cambridge Core.

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Ketersediaan

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Informasi Detail

Judul Seri

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No. Panggil

610 EMI e

Penerbit

Cambridge : Cambridge University Press., 2022

Deskripsi Fisik

xiv, 316p: ill,

Bahasa

English

ISBN/ISSN

9781108652599

Klasifikasi

610

Tipe Isi

text

Tipe Media

computer

Tipe Pembawa

online resource

Edisi

-

Subjek

Human Rights
Humans
Narration
Confidentiality
Patient Rights

Info Detail Spesifik

-

Pernyataan Tanggungjawab

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Versi lain/terkait

Lampiran Berkas

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